Treatments for Congenital Heart Defects (CHD) vary depending on the nature and severity of the illness. Many babies who have been identified with CHD have a mild defect that may not require treatment. Others may require treatment, mainly in the form of medicine or surgery. On this page, you’ll find resources intended to help you better understand the various types of treatments that your child may require.
Preparing Your Child for Surgery
Your starting point on this website as you prepare for your child’s surgery at BC Children’s Hospital or the Stollery Children’s Hospital.
FONTAN Educational Videos
The following videos were produced by the Stollery Children’s Hospital in partnership with the University of Alberta, The Mazankowski Alberta Heart Institute, and The Women and Children’s Health Research Institute (WCHRI).
Heart & Soul
This extensive resource covers topics related to Congenital Heart Defects, including coping with your child’s diagnosis, visiting the hospital, navigating the healthcare system, and more.
A website developed by the Hearts in Rhythm Organization (HiRO) that provides information about inherited heart rhythm conditions and associated treatments.
Pediatric and Congenital Heart Disease
The Society of Thoracic Surgeons (STS) is an organization representing more than 7,600 surgeons, researchers, and allied health care professionals worldwide who are dedicated to ensuring the best possible outcomes for surgeries of the heart and lungs. WCCHN and our CV Surgeons have been longtime participants of the STS and their National Congenital Heart Surgery Database. This website was created by STS to provide patients and families with information about the different types of pediatric CHD and the possible treatment options.
Preparing Your Child for a Heart Check-Up
The Canadian Congenital Heart Alliance (CCHA), in collaboration with UBC, developed an illustrated book for children ages 5-8. This story follows Penelope – a young girl – as she travels to the hospital for her ‘heart checkup’. Reading this story with your child a few days before their heart checkup will help prepare them for their visit with the Heart Team. The book includes 2 colouring activity pages to help your child engage with Penelope on her journey.
You don’t have to search for information alone.