Need to talk to someone? Call us at (587) 782-3259 or email us to connect.

Need to talk to someone? 

Call us at (587) 782-3259 or email us to connect.

Developmental Care

Developmental Care
Developmental Care

At WCCHN, we recognize that children with congenital heart disease (CHD) face unique neurodevelopmental challenges. WCCHN’s investment in neurodevelopment has supported the creation of expert-led educational content to enhance teaching and counseling in this critical area. This section brings together the expertise of Dr. Marsha Vasserman and Veena Sivarajan, two leading experts in developmental care for children with CHD.

Dr. Marsha Vasserman’s video series explores the theories behind brain development in children with CHD, examining how prenatal factors, medical interventions, and long-term care shape cognitive, emotional, and social outcomes. Complementing this, Veena Sivarajan’s work focuses on practical strategies for integrating developmental care as a standard in the Pediatric Cardiac Intensive Care Unit (PCICU). Together, these expert insights provide valuable teaching and counselling for families, healthcare providers, and educators striving to support children with CHD.

Understanding Neurodevelopment in CHD

A Video Series by Dr. Marsha Vasserman

Children with CHD experience unique developmental challenges that require specialized attention and care. In this video series, Dr. Marsha Vasserman explores the science behind brain development in CHD, the impact of surgeries and medical interventions, and strategies to support cognitive and emotional growth. These videos offer a foundation for understanding the complexities of neurodevelopment and provide guidance for families and professionals alike.

The Heart and Brain Connection in CHD 
Presenters: Dr. Kim Myers and Dr. Marsha Vasserman


This 34 min. video introduces the critical relationship between the heart and brain in children with CHD, explaining how altered oxygen delivery and circulation impact early brain growth and function. You can access a PDF of the workshop summary brochure here.
The Heart and Brain

Thinking and Learning in School Age
Presenter: Dr. Marsha Vasserman, Psy.D., ABPP


This 44 min. video is a deep dive into how CHD affects school-age children’s cognitive development, including learning disabilities, attention challenges, and strategies for academic success. You can access a PDF’s of an information brochure with some of the highlights, as well as resource page here.
Thinking and Learning in CHD
Learning Resources

Cognitive and Social Development in Adolescence 
Presenter: Dr. Marsha Vasserman, Psy.D., ABPP


This 38 min. video explores the impact of CHD on social and emotional development during adolescence, including executive functioning, peer relationships, and mental health considerations.

Transitioning to Adulthood
Presenter: Deb Thul


This 44 min. video discusses the challenges of transitioning from pediatric to adult healthcare, the importance of continuity of care, and strategies to support independence in young adults with CHD. You can access a PDF of the workshop summary brochure here.
Adolescent Development and CHD

Navigating School Systems 
Presenter: Oonagh Graham


This 29 min. video explores how to confidently navigate Alberta’s school system with practical tips on early intervention, classroom support, and advocacy for children with complex medical needs. Whether you’re preparing for preschool or planning a smooth transition through K–12, this video gives you the tools to become your child’s strongest educational ally.

CHD and Early Child Development
Presenter: Dr. Pamela Veale


This 39 min. video highlights the effects of CHD on early childhood brain development, including motor skills, sensory processing, and early learning milestones.

Pediatric Anxiety in Medically Complex Children
Presenters: Dr. Rachel Hnatowich


This 48 min. video examines the prevalence of anxiety in children with CHD and other medical conditions, offering strategies for managing stress, medical trauma, and emotional well-being. You can access a PDF of the workshop summary brochure here.
Anxiety in Children with CHD

Brain Development in Congenital Heart Disease (CHD) 
Presenters: Dr. Kim Myers and Dr. Marsha Vasserman


This 33 min. video provides an overview of how CHD affects brain development from infancy to adulthood, discussing key risk factors, protective strategies, and the role of developmental care. You can access a PDF of the workshop summary brochure here.
The Heart and Brian

Each video offers essential information to help caregivers and healthcare professionals understand, monitor, and support the neurodevelopment of children with CHD. Click on the links to watch and learn more or click to see the complete playlist.
YouTube Playlist

You can also find them on Instagram @strongheartsgrowingminds

Understanding and Supporting Your Child’s Learning Journey

There is no wrong time to start thinking about your child’s learning journey. The sooner you have insight, the sooner you can plan the right supports. Every child grows at their own pace, and understanding what is ahead can help you feel prepared and confident. In this next section, we will explore practical ways to support your child’s development and learning. You will find guidance on understanding psychoeducational assessments, creating individualized plans, building executive function skills, and preparing for the next steps as your child grows.

A psychoeducational assessment is a detailed evaluation that looks at how a child learns, thinks, and processes information. It explores areas such as memory, attention, problem-solving, academic skills, and emotional well-being. The goal is to understand a child’s learning profile and how their strengths, challenges, and medical or developmental factors might influence school performance.

For children with congenital heart disease (CHD) or other complex medical needs, these assessments can be an important tool to support long-term learning and success. Some children may have subtle or emerging learning difficulties that become more visible as academic expectations increase. Understanding how your child learns can help families and educators make informed decisions early.

When Should an Assessment be Considered?

Families often consider a psychoeducational assessment when learning, behaviour, or daily functioning challenges persist over time. Assessments can be helpful at any age, but key moments include starting school, moving to a new grade level, or when academic or emotional demands increase.

You may want to explore an assessment if you notice:

  • Ongoing difficulties with attention, memory, organization, or processing information.
  • Teacher concerns about learning progress, behaviour, or emotional regulation.
  • Increased frustration, anxiety, or avoidance around schoolwork.
  • Medical factors (such as CHD) that may influence learning or executive function.
  • You need documentation to access school supports or develop an Individualized Program Plan (IPP).
  • Others consistently reporting concerns.

Additional steps to consider:

  • Talk with your child’s school to review concerns, gather classroom observations, and learn what support options exist.
  • Ask about assessment pathways in your school district, including eligibility and wait times.
  • Explore private assessment costs and potential coverage through insurance, funding programs, or payment plans.
  • Clarify what documentation the school needs for accommodations or an IPP so the assessment aligns with future planning.

For younger children, early developmental assessments may provide a first look at learning and developmental needs. As children enter elementary school, a psychoeducational assessment can offer deeper insights into academic and cognitive functioning, typically conducted by a registered psychologist.

Who Completes the Assessment?

Assessments are usually conducted by a registered psychologist who specializes in education and child development. They use standardized tools and work closely with parents, teachers, and sometimes healthcare providers to form a full picture of the child’s learning profile. 

Results are typically shared in a written report that outlines:

  • Areas of strength and challenge
  • Any diagnoses (e.g., learning disability, ADHD, processing disorder)
  • Recommendations for teaching strategies and school supports

What Happens After the Assessment?

After receiving the report, parents are encouraged to:

  1. Review the findings – with the psychologist and ask questions about what the results mean.
  2. Share the report with the school team, including teachers and the learning support teacher.
  3. Collaborate with educators to develop or adjust the child’s Individualized Program Plan (IPP) (see next section below).
As noted in Dr. Vasserman and Oonagh Graham’s video, Navigating School Systems, documentation from assessments plays a key role in ensuring that supports follow a child through school transitions, so keeping copies and records in a personal binder is recommended.

Why It Matters

A psychoeducational assessment can:

  • Identify specific learning strengths and needs, not just test scores.
  • Help schools tailor classroom instruction and accommodations.
  • Empower families to advocate for appropriate supports.
  • Reduce frustration and anxiety by clarifying how a child learns best.

It’s never too early or too late to ask questions about learning and development. Whether your child is entering preschool, elementary, or high school, understanding their learning profile helps set them up for success, both academically and emotionally.

Once a psychoeducational assessment (or another form of developmental evaluation) identifies your child’s learning needs, the next step is putting those insights into action. This is where an Individualized Program Plan (IPP), sometimes called an Individualized Education Plan (IEP), comes in.

An IPP is a personalized roadmap developed by your child’s school to support learning success. It takes assessment results, teacher observations, and parent input and translates them into clear goals, strategies, and supports that help your child learn and thrive.

An IPP is also a working document that changes as your child grows, their learning needs evolve, or new assessments are completed.

What Is an IPP?

An Individualized Program Plan (IPP) outlines the unique educational needs of a child who requires additional support(s) to be successful in school. It may include:

  • Personalized learning goals that are specific and measurable.
  • Accommodations or strategies, such as extra time, modified assignments, or assistive technology.
  • Supports or services, like speech therapy, occupational therapy, or classroom aide.
  • Transition planning, especially during key educational stages (ECS to Grade 1, elementary to junior high, or high school to post-secondary).

The plan is created collaboratively by the school team including teachers, administrators, support staff, and parents or caregivers, with input from health professionals when appropriate.

How an IPP Comes Together

The IPP process usually follows these steps:

  1. Identification – A psychoeducational assessment, teacher observation, or medical recommendation identifies that a child has learning differences or additional needs.
  2. Planning – The school gathers information, reviews assessment results, and collaborates with the family to define learning goals.
  3. Implementation – Teachers put the plan into practice, using tailored strategies in the classroom.
  4. Review and Update – The plan is revisited throughout the school year (often 2–3 times) to monitor progress and make changes.

This ensures the plan stays relevant and reflects current progress, rather than becoming a static document.

To view our IPP Cheat Sheet with sample strategies and accommodations, click the image below.

IPP Cheat Sheet for Parents

This guide is designed to help parents understand common learning supports and strategies that are often discussed as part of an Individualized Program Plan (IPP). It is not a checklist you must complete, and not all strategies will be right for every child. 

How Parents Can Use This Cheat Sheet:

  • Start with the “Start Here” section
  • Highlight strategies that feel most helpful
  • Share observations with the school team
  • Review supports regularly as your child grows

What an IPP is: A written plan that outlines learning goals, strategies, and supports.

What an IPP is not: A diagnosis, a promise of services, or a replacement for classroom teaching.

Use this resource to prepare for conversations, not to replace them.

Your Role as a Parent or Caregiver

Parents are essential members of the planning team. You bring valuable insights into your child’s personality, preferences, and daily routines that can help educators create a plan that works in practice, not just on paper.

You can support the process by:

  • Sharing what strategies work best at home or during homework.
  • Asking for clarity on your child’s learning goals and progress.
  • Keeping open communication with the school about any changes in medical or emotional health.
  • Reviewing the plan regularly, providing feedback, and requesting updates as needed.

Even if your child’s challenges seem small, being involved early can make a significant difference.

Why an IPP Matters

An IPP helps ensure your child has equitable access to learning opportunities. It is also an important record that follows your child through school transitions.

Strong, ongoing collaboration among parents, teachers, and support professionals helps build a consistent foundation. It also ensures your child doesn’t have to “start over” each school year or when changing schools.

After assessments have been conducted and reviewed, the next key step is ensuring that your child has the right supports to access and participate in their learning. This often centers on Executive Function (EF), the set of that help with planning, organizing, focusing attention, remembering instructions, and managing time and emotions. Many children with congenital or complex medical histories may experience subtle challenges in these areas, particularly after long hospital stays or developmental interruptions.

Understanding and supporting EF is essential because it directly impacts how your child applies what’s outlined in their IPP. This is where accommodations come in, the changes that make learning more accessible without altering the curriculum. Examples include visual schedules, task checklists, extra time for assignments, reduced distractions, or breaking larger projects into smaller, manageable steps. These strategies help children engage with learning while maintaining confidence and reducing frustration.

If you notice some of these patterns, it may be helpful to revisit your child’s IPP meeting and discuss specific EF supports or classroom accommodations. Over time, these foundational strategies can help your child become more independent and better equipped for ongoing growth and advocacy.

As your child’s learning journey continues, their needs may shift. Early intervention programs (such as those discussed at 21:00–26:00 in the Navigating School Systems video) can help build strong foundations in preschool and kindergarten, while IPPs guide ongoing supports throughout elementary, middle, and high school.

Every stage offers an opportunity to reassess, collaborate, and adjust. What matters most is staying curious, staying involved, and remembering that each child’s path is unique and no one has to walk it alone.

Practical Applications in Developmental Care

As children grow, their developmental and educational needs evolve, yet the foundation for learning, regulation, and long-term outcomes begin much earlier. The tools discussed above help families navigate school-age challenges, but many of the underlying skills are shaped in infancy, especially for children with CHD who spend time in critical care environments. To complete the picture, the next section returns to the earliest stage of the journey, highlighting how developmental care in the hospital can support brain development, strengthen parent–infant bonding, and set the groundwork for future learning.
 
The PCICU MIND Program with Veena Sivarajan, Clinical Nurse Specialist

While medical advancements have improved survival rates for children with CHD, increased attention is needed to support their long-term neurodevelopment. The PCICU MIND Program, developed at Stollery Children’s Hospital, focuses on enhancing brain development and promoting family bonding in the intensive care setting. Many strategies can be adapted for at home or on-site without a dedicated MIND Program.

Digital Story: Cultivating MINDfullness: Enhancing Neurodevelopment in the PCICU

This digital story, co-created with Veena Sivarajan, Clinical Nurse Specialist in the Pediatric Cardiac Intensive Care Unit at Stollery Children’s Hospital, introduces the PCICU MIND Program and its neurodevelopmental rounds. It highlights how extended hospital stays can disrupt normal developmental milestones and how structured interventions help bridge these gaps. Through weekly developmental care rounds, families and healthcare teams collaborate to implement individualized strategies, empowering parents and improving long-term outcomes for children with CHD.
Watch YouTube Video

MIND Program Information Pamphlet
Learn more about developmental care in the PCICU or at home, including its focus, benefits, and activity ideas for all ages—from infants to adolescents.
MIND Program – Developmental Care in the PCICU

The MIND Program represents a shift in how developmental care is approached in the PCICU, transforming routine practices to prioritize cognitive, emotional, and social well-being alongside medical treatment. By fostering resilience in both patients and families, this initiative lays the groundwork for improved quality of life and future success.

More content will be added as the MIND Program continues to grow, so check back for updates and additional resources.