At WCCHN, we recognize that children with congenital heart disease (CHD) face unique neurodevelopmental challenges. WCCHN’s investment in neurodevelopment has supported the creation of expert-led educational content to enhance teaching and counseling in this critical area. This section brings together the expertise of Dr. Marsha Vasserman and Veena Sivarajan, two leading experts in developmental care for children with CHD.
Dr. Marsha Vasserman’s video series explores the theories behind brain development in children with CHD, examining how prenatal factors, medical interventions, and long-term care shape cognitive, emotional, and social outcomes. Complementing this, Veena Sivarajan’s work focuses on practical strategies for integrating developmental care as a standard in the Pediatric Cardiac Intensive Care Unit (PCICU). Together, these expert insights provide valuable teaching and counselling for families, healthcare providers, and educators striving to support children with CHD.
Children with CHD experience unique developmental challenges that require specialized attention and care. In this video series, Dr. Marsha Vasserman explores the science behind brain development in CHD, the impact of surgeries and medical interventions, and strategies to support cognitive and emotional growth. These videos offer a foundation for understanding the complexities of neurodevelopment and provide guidance for families and professionals alike.
The Heart and Brain Connection in CHD
Presenters: Dr. Kim Myers and Dr. Marsha Vasserman
This 34 min. video introduces the critical relationship between the heart and brain in children with CHD, explaining how altered oxygen delivery and circulation impact early brain growth and function. You can access a PDF of the workshop summary brochure here.
The Heart and Brain
Thinking and Learning in School Age
Presenter: Dr. Marsha Vasserman, Psy.D., ABPP
This 44 min. video is a deep dive into how CHD affects school-age children’s cognitive development, including learning disabilities, attention challenges, and strategies for academic success. You can access a PDF’s of an information brochure with some of the highlights, as well as resource page here.
Thinking and Learning in CHD
Learning Resources
Cognitive and Social Development in Adolescence
Presenter: Dr. Marsha Vasserman, Psy.D., ABPP
This 38 min. video explores the impact of CHD on social and emotional development during adolescence, including executive functioning, peer relationships, and mental health considerations.
Transitioning to Adulthood
Presenter: Deb Thul
This 44 min. video discusses the challenges of transitioning from pediatric to adult healthcare, the importance of continuity of care, and strategies to support independence in young adults with CHD. You can access a PDF of the workshop summary brochure here.
Adolescent Development and CHD
Navigating School Systems
Presenter: Oonagh Graham
This 29 min. video explores how to confidently navigate Alberta’s school system with practical tips on early intervention, classroom support, and advocacy for children with complex medical needs. Whether you’re preparing for preschool or planning a smooth transition through K–12, this video gives you the tools to become your child’s strongest educational ally.
CHD and Early Child Development
Presenter: Dr. Pamela Veale
This 39 min. video highlights the effects of CHD on early childhood brain development, including motor skills, sensory processing, and early learning milestones.
Pediatric Anxiety in Medically Complex Children
Presenters: Dr. Rachel Hnatowich
This 48 min. video examines the prevalence of anxiety in children with CHD and other medical conditions, offering strategies for managing stress, medical trauma, and emotional well-being. You can access a PDF of the workshop summary brochure here.
Anxiety in Children with CHD
Brain Development in Congenital Heart Disease (CHD)
Presenters: Dr. Kim Myers and Dr. Marsha Vasserman
This 33 min. video provides an overview of how CHD affects brain development from infancy to adulthood, discussing key risk factors, protective strategies, and the role of developmental care. You can access a PDF of the workshop summary brochure here.
The Heart and Brian
Each video offers essential information to help caregivers and healthcare professionals understand, monitor, and support the neurodevelopment of children with CHD. Click on the links to watch and learn more or click to see the complete playlist.
YouTube Playlist 
You can also find them on Instagram @strongheartsgrowingminds
Practical Applications in Developmental Care
While medical advancements have improved survival rates for children with CHD, increased attention is needed to support their long-term neurodevelopment. The PCICU MIND Program, developed at Stollery Children’s Hospital, focuses on enhancing brain development and promoting family bonding in the intensive care setting. Many strategies can be adapted for at home or on-site without a dedicated MIND Program.
Digital Story: Cultivating MINDfullness: Enhancing Neurodevelopment in the PCICU
This digital story, co-created with Veena Sivarajan, Clinical Nurse Specialist in the Pediatric Cardiac Intensive Care Unit at Stollery Children’s Hospital, introduces the PCICU MIND Program and its neurodevelopmental rounds. It highlights how extended hospital stays can disrupt normal developmental milestones and how structured interventions help bridge these gaps. Through weekly developmental care rounds, families and healthcare teams collaborate to implement individualized strategies, empowering parents and improving long-term outcomes for children with CHD.
Watch YouTube Video
MIND Program Information Pamphlet
Learn more about developmental care in the PCICU or at home, including its focus, benefits, and activity ideas for all ages—from infants to adolescents.
MIND Program – Developmental Care in the PCICU
The MIND Program represents a shift in how developmental care is approached in the PCICU, transforming routine practices to prioritize cognitive, emotional, and social well-being alongside medical treatment. By fostering resilience in both patients and families, this initiative lays the groundwork for improved quality of life and future success.
More content will be added as the MIND Program continues to grow, so check back for updates and additional resources.
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